Health & Fitness

PANS/PANDAS STORIES

by Lucy McDonald

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Latest episodes

Expert: Paediatric PANS & OCD specialist Barb Shephard talks ERP

September 23, 2026 · 52 min

** NOTE - IN THIS EPISODE I say that inference-based CBT is not evidence-based. This is wrong. I meant it is not evidence-based in children yet (although that work is underway) but it is evidence-informed in children. It is approved by the…
OCD Special: I-CBT - Suicidal Intrusive Thoughts with Therapist Angela Henry

September 10, 2026 · 1 hr 1 min

OCD and PANS PANDAS specialist Angela Henry talks about treating OCD using I-CBT. This is a different approach that focuses on doubt – particularly how OCD can make us distrust what we know through our senses and experience. Rather than…
The Day Our Children Changed Overnight: Two Mothers on PANS/PANDAS

July 6, 2026 · 1 hr 15 min

A whopping episode-in more ways than one. In this podcast I speak to PANS/PANDAS parent and advocate Lindsey Forsyth and her friend and fellow PANS/PANDAS mother, Kate Rooney. Longer than normal, as there was so much to talk about, and it…
IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

May 18, 2026 · 56 min

Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of inflammation broadens the lens of…
Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

May 4, 2026 · 56 min

((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks)) This week Lucy is joined by Dr. Leila Masson, a…

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Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

April 12, 2026 · 57 min

Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m on Instagram. As a child, she was prone…
OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

March 18, 2026 · 55 min

Dr Zoe Gillispie is one of the world's leading neuroimmune-psychiatric psychologists, working with children and families with PANS/PANDAS from her Californian practice. Here she shares insights and expertise about the illness with Lucy…
Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

February 28, 2026 · 46 min

Michelle Newby thinks that Occupational Therapy should be the fourth pillar of PANS/PANDAS treatment, after controlling inflammation and infection and psychiatric and psychological help. She works closely with PANS/PANDAS children in…
Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

February 20, 2026 · 47 min

"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disorder gives them the notion of..." One of…
Recovering From PANS/PANDAS: A Teenager’s Story of Hope

December 5, 2025 · 51 min

In this episode of PansPandas Stories, host Lucy McDonald interviews Freya Shacklock, a 19-year-old who shares her inspiring journey of recovery from PANS-PANDAS, a condition that caused her severe mental health challenges and physical…
PANS Flares, Medication and Recovery | Dr Kiki Chang

November 17, 2025 · 49 min

It has been a while since the last PANS PANDAS Stories and our return is marked by an interesting chat with Dr Kiki Chang. He has a long PP pedigree and now works privately in the States where he has been instrumental in treating children…
Our Journey to a PANDAS Diagnosis | A Parent’s Story from Instagram's Parenting_PANDAS

December 19, 2024 · 37 min

In the last episode of the year, we talked to Lucy from Parenting_PANDAS on Instagram. Lucy shares her story with her 10,000-strong community, charting the hope and despair of life as a PANDAS parent. Originally posting about Pathological…

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About the show

Welcome to PANS/PANDAS Stories. Join Lucy McDonald as she talks to children and parents living with this misunderstood neuropsychiatric condition and to the experts dedicated to understanding and treating it. Awareness is growing, and this podcast hopes to grow it further. Real stories, honest conversations, and hope for anyone finding their way along the long and complicated road to recovery. Some episodes contain themes listeners may find upsetting. This podcast does not replace medical advice.