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Untold Stories: Life with a Severe Autoimmune Condition
by iHeartPodcasts
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Ranking history · Ireland
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Latest episodes
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Allison: A Lifetime of Progress with MG
October 7, 2026 · 26 minAllison Foss was diagnosed with MG at just five years old. Join Martine Hackett as Allison looks back on a lifetime with MG and the remarkable changes she’s witnessed along the way, from a growing understanding of MuSK-positive MG to…
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Untold Stories is back for Season 7!
September 23, 2026 · 1 minMartine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. This season, we’re exploring what comes after diagnosis through stories of hope, progress, and connection. From advances in research and…
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Carly and Catherine: Hope, Uncertainty, and Clinical Trials.
August 6, 2026 · 27 minCatherine, who is living with IgA nephropathy (IgAN), and Carly, a speech-language pathologist whose CIDP once left her paralyzed and dependent on a ventilator, share their experiences participating in clinical trials and the difficult…
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Holly: Moving Forward with Myositis.
July 15, 2026 · 28 minHolly shares her story of being diagnosed with myositis at just 19 years old and transforming the challenges of a rare autoimmune disease into a lifelong commitment to advocacy and community. Join Martine Hackett as she explores how…
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Amanda: From CIDP Diagnosis to Discovering Her Purpose
July 1, 2026 · 27 minAmanda shares how a CIDP diagnosis changed nearly every aspect of her life, ultimately leading her to become a powerful advocate for the rare disease community. Join Martine Hackett as she explores the emotional impact of diagnosis, the…
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Alicia: The Long Road to Answers with Seronegative MG
June 17, 2026 · 24 minAlicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as she explores how connection and shared experiences can help people…
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Mel & Lindsay: Different Diagnoses. Shared Experiences.
June 2, 2026 · 28 minMel is a dancer living with CIDP. Lindsay is a writer living with dermatomyositis. In this episode, Martine Hackett explores how similar the emotional journey can feel as two people living with different rare diseases navigate uncertainty…
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J’Sean: The Impact of MG with Ocular Symptoms
May 20, 2026 · 29 minIn the season premiere, J’Sean shares what it’s like to live with MG with ocular symptoms. Join Martine Hackett as she explores the real impact of ocular symptoms–– and how understanding that impact can help you be heard and find the right…
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Untold Stories is back for Season 6!
May 13, 2026 · 2 minMartine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. The best stories unite us, empower us, and help us push forward—against all odds. This season, we’re growing our community, and welcoming…
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Brandon & Dr. Thawani: The power of shared-decisions
December 24, 2025 · 30 minAfter a sudden change in mobility, Brandon Cutrell found himself on an unexpected path toward a CIDP diagnosis. That journey led him to build a remarkable partnership with his neurologist, Dr. Sujata Thawani. In this special episode…
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Aging With an Autoimmune Disease
December 10, 2025 · 25 minWhen Sandy was diagnosed with MG at age 60, she was forced to retire early, leaving behind the job she loved and facing her golden years with unanticipated hurdles. Now 15 years later, Sandy spends her days organizing her local support…
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Adapting through Life’s Milestones
November 26, 2025 · 27 minAs Britt prepared to give birth to her first child, an unexpected CIDP diagnosis changed everything. Just like that, motherhood looked incredibly different than she had imagined. Hear how Britt learned to walk with her son, fought to…
About the show
For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.