Health & Fitness

Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

by Visible with Emily Kate Stephens

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Latest episodes

#43 Patient-focused care and practitioner education with Bateman Horne Center’s, Tahlia Ruschioni

October 16, 2026 · 1 hr 2 min

Putting patients at the heart of chronic illness care and research whilst supporting and educating practitioners, to develop robust, proven pathways and positive outcomes for those with ME/CFS, Long Covid, Fibromyalgia, EDS and related…
#42 Uniting the field to move faster together with Complex Disorders Alliance's Amy Rochlin

October 1, 2026 · 1 hr 4 min

Bringing together research across Long Covid, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS) and other co-morbid conditions heralding faster…
#41 Cracking the genetic code of complex chronic illness with Steve Gardner, PrecisionLife

September 7, 2026 · 53 min

PrecisionLife are cracking the genetic code in complex chronic illness with their latest research in ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome) and Long Covid. Through large-scale studies in with DecodeME, the LOCOME…
#40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS

August 7, 2026 · 1 hr 5 min

REVIEW: with Nancy Klimas, Peter Rowe, Lucinda Bateman, Todd Davenport & Theoharis Theoharides For decades, people living with ME/CFS, Long Covid, fibromyalgia, EDS and other complex chronic illnesses have faced too few answers. But…
#39 ME/CFS & EDS bedbound for 8 years - Learning to Live Again with Lizzie and Amy Mooney

July 24, 2026 · 53 min

STORIES: ME/CFS and EDS left Lizzie bedbound for eight years - a mother's fight for answers and a daughter's fight to reclaim independence. Lizzie Mooney became chronically sick with ME/CFS and Ehlers-Danlos syndrome (EDS) at just nine…

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#38 Pacing is Power - POTS, PEM, EDS & MCAS strategies with Dr Clayton Powers

July 10, 2026 · 59 min

STRATEGIES: Physical therapy tools to reduce crashes and improve quality of life for POTS, Post-Exertional Malaise (PEM), EDS, MCAS, and infection-associated chronic conditions such as ME/CFS and Long Covid. Many patients are told that…
#37 ME/CFS breakthroughs: are treatments getting closer? With ActionForME, NIH, CODA, Bateman Horne Center & PrecisionLife

June 26, 2026 · 60 min

SCIENCE: Are ME/CFS research breakthroughs finally helping us understand the disease and move closer to treatments? ME/CFS has been underfunded and under-researched for decades. Despite the scale and severity of the illness, major gaps…
#36 My daughter’s Long Covid changed how I practice medicine with Dr Binita Kane

June 13, 2026 · 59 min

STORIES: What do you do when your medical training has no answers for your own child? This is the question that Dr Binita Kane found herself facing in the aftermath of the Covid-19 pandemic. As a Consultant Respiratory Physician, Dr Kane…
#35 Vagus nerve stimulation for chronic illness and better health with Dr Elisabetta Burchi

May 29, 2026 · 1 hr 1 min

SCIENCE: What if a small, non-invasive device could help regulate your nervous system, reduce inflammation, improve cognitive function, and support recovery from chronic illness? Dr Elisabetta Burchi, psychiatrist, entrepreneur, and Head…
#34 Fibromyalgia and chronic pain management with Ryan Bourdo, Physical Therapist

May 15, 2026 · 55 min

STRATEGIES: Physical rehabilitation for chronic pain conditions. If you live with fibromyalgia, ME/CFS, EDS or chronic pain, you've likely heard that exercise may help. You've also probably learned, the hard way, that the wrong kind of…
#33 Hypermobile Ehlers-Danlos Syndrome (hEDS) undiagnosed for 23 years with Dr Lucy Foulkes

May 1, 2026 · 1 hr 13 min

STORIES: Undiagnosed Hypermobile Ehlers-Danlos Syndrome (hEDS) | Chronic Pain, Diagnosis & Living with Complex Chronic Illness For 23 years, Dr Lucy Foulkes has lived with chronic pain, migraines, endometriosis, joint hypermobility, and a…
#32 Hidden Virus, Immune Exhaustion & the Brain: Long Covid, ME/CFS and post-viral illness with Dr Avindra Nath (NIH)

April 24, 2026 · 58 min

SCIENCE: Long Covid | ME/CFS | Neuroinflammation | Clinical Trials What happens to the brain when a virus takes hold and why do some people never fully recover? Dr Avindra Nath has spent his career at the intersection of neurology and…

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About the show

Shining a light on invisible illness. Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive into the science of energy-limiting, chronic illness, whilst providing patients, caregivers and medical professionals with practical tools to diagnose, understand and manage their conditions. From pacing to supplements, repurposed drugs to biomarkers, therapies to advocacy groups, we share the work that is being done for and by the community, helping patients navigate their symptoms, emotions and lives. Join us every two weeks. To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at: Make Visible @visible.health