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Bringing Sickle Cell Disease to Life
by American Society of Hematology
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Latest episodes
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Follow Your Heart
August 12, 2022 · 23 minThe final episode of Bringing Sickle Cell Disease to Life explores the concepts of putting research into practice, implementation science, and advocacy. Dr. Wally Smith hears from sickle cell pioneer and researcher Dr. Marilyn Hughes…
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Connections Across the Globe
August 8, 2022 · 24 minSickle cell disease (SCD) affects people all over the world. In this episode, Dr. Wally Smith interviews Dr. Russell Ware, an SCD provider and researcher who assembled an international team of experts to participate in global clinical…
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Everyone Has a Place
July 29, 2022 · 15 minNot enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reach individuals in rural communities. SCD…
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Home Is Where the Care Is
July 22, 2022 · 21 minResearchers, patients, and providers discuss the importance of a quality “medical home” for people living with sickle cell disease (SCD). ASH Research Collaborative Community engagement Manager Shauna Whisenton, an SCD warrior, describes…
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Fighting Racism From the Lab Bench to the Patient Bedside in Sickle Cell Research
June 10, 2022 · 18 minTranslational research discoveries have been critical in improving care for people living with sickle cell disease (SCD). In this episode, Dr. Courtney Fitzhugh shares her passion for translational research and how it can directly help…
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Improving Emergency Care: The Painful Truth
June 3, 2022 · 17 minEmergency departments (ED) are inevitable for people living with sickle cell disease (SCD). Many clinicians in the ED, however, misunderstand the disease and perceive patients as drug seekers. This episode explores how education can help…
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Waiting for Mercy
May 27, 2022 · 23 minStructural racism and implicit bias are prominent in the care of people living with sickle cell disease (SCD). Dr. Marilyn Hughes Gaston shares how she unwittingly showed bias early in her career and learned from her mistake. Host Dr…
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Chwechweechwe: Relentless Perpetual Chewing
May 20, 2022 · 30 minSevere pain, which is the most common complication for people living with sickle cell disease (SCD), severely affects their quality of life. This episode starts with a passage about the excruciating pain a person living with SCD endures…
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Making the Leap From Physician to Researcher
April 15, 2022 · 21 minIn the final episode of Season 1, Dr. Courtney Fitzhugh encourages medical students interested in sickle cell disease to get involved and reach out to a mentor. She shares her journey to becoming a physician scientist with a lab at the…
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Finding a Purpose Through Sickle Cell Disease Research
April 8, 2022 · 20 minIn this episode, Dr. Betty Pace explains her path to conducting research in sickle cell disease. As a clinician and researcher, she shares how she was able to bring the clinical perspective to the lab. Learn some important techniques to…
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Ubuntu: I Am Because We Are
April 1, 2022 · 22 minYoung individuals living with sickle cell disease eventually age out of the pediatric units and struggle as they transition to adult care. In this episode, we hear from Kyle, a person living with sickle cell disease, about his experience…
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An Unpredictable Childhood
March 25, 2022 · 23 minIn the past, children with undiagnosed sickle cell disease were at risk of dying in as little as nine hours of sepsis. In this episode of Bringing Sickle Cell Disease to Life, we hear more from Kyle, an individual living with sickle cell…
About the show
This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the disease, the global impact and need for additional providers, disparity and bias in sickle cell disease, and promising news regarding the management and treatment of sickle cell disease. Learn about the past, present and future of sickle cell, and join us in the fight for sickle cell disease survival!