Beyond the Count
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Latest episodes
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FATIGUE & ITP - Part 1 - What Does Fatigue in ITP Look Like?
October 21, 2026 · 37 minFatigue is one of the most common symptoms experienced by people living with ITP. Yet for many patients, it's also one of the most difficult to explain. It's more than feeling tired after a busy day. It's waking up exhausted after a full…
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ITP: More Than a Diagnosis
October 7, 2026 · 37 minITP: More Than a Diagnosis The Relationships, Support and Community That Carry Us Through Being diagnosed with ITP can feel incredibly isolating. Suddenly you're navigating specialist appointments, blood tests, treatment decisions, and a…
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So, You've Been Diagnosed with ITP. Now What?
September 23, 2026 · 15 minSo, You've Been Diagnosed with ITP. Now What? Being diagnosed with ITP can feel like your world has been turned upside down. One minute, life feels completely normal. The next, you're learning about platelet counts, treatments, blood…
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Decoding Risk Series - Part 4: Becoming a Partner in Your Care
August 26, 2026 · 29 minUnderstanding risk is important. But knowing how to ask questions, communicate what matters to you, and make confident decisions is where it all comes together. In the final episode of our Decoding Risk series, Danielle Boyle is joined by…
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Stronger Together: How Global Collaboration is Changing the Future of ITP
August 12, 2026 · 25 minWhat happens when patient advocates from around the world come together with one shared goal: improving the lives of people living with ITP? In this special episode of Beyond the Count, Danielle Boyle takes listeners behind the scenes of…
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Decoding Risk Series: Part 3 - The Words that Trick Our Brains
July 22, 2026 · 19 minDecoding Risk Series — Part 3: The Words That Trick Our Brains When you read that a side effect is "common" or "rare", what do those words actually mean? For many patients, these terms can trigger fear and uncertainty because the way we…
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Clinical Trials Explained: What they are, How they work and How to know if they're right for you
July 8, 2026 · 43 minClinical trials can feel complicated, overwhelming, and sometimes even a little intimidating. Yet every treatment available today has reached patients because people chose to participate in clinical research. In this episode of Beyond the…
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Decoding Risk Series: Part 2 - Why Medication Leaflets Look So Terrifying
June 24, 2026 · 19 minDecoding Risk Series — Part 2: Why Medication Leaflets Look So Terrifying You know the feeling. You open a medication leaflet, and suddenly you’re staring at pages of tiny print and an endless list of side effects that make you wonder…
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Watch and Wait: Why doing nothing is sometimes the best medicine.
June 10, 2026 · 26 minFor many parents, hearing that their child has ITP is overwhelming. But what can feel even more confronting is being told that the best approach might be to “watch and wait.” In this episode of Beyond the Count, Danielle Boyle is joined by…
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Decoding Risk Series: Part 1 - Why Side Effects Happen
June 8, 2026 · 26 minWhy Side Effects Happen | Decoding Risk (Part 1) Starting a new treatment for ITP can feel overwhelming, especially when side effects enter the conversation. For many patients, it’s not just the treatment itself that creates uncertainty…
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Blood Clots in ITP: What Patients Need to Know
May 13, 2026 · 25 minBlood Clots in ITP: What Patients Need to Know | Beyond the Count Podcast Most people living with Immune Thrombocytopenia (ITP) are taught to focus on bleeding risk. But what many don’t realise is that ITP can also increase the risk of…
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"But You Don't Look Sick": The Invisible Reality of Living with ITP
April 29, 2026 · 30 minITP is often called an “invisible illness”, and for many patients, the hardest battles are the ones no one else can see. In this episode of Beyond the Count, Danielle speaks with longtime volunteer and ITP patient, Stassi Austin, about the…

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