The Rare Life
Today: #91 in Kids & Family, India on our combined chart.
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Latest episodes
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234: Carolina’s Story | A Surprise Diagnosis, A Liver Transplant, + When Relaxing Feels Risky
October 8, 2026 · 47 minWhen Carolina’s daughter Cruz was just days old, newborn screening revealed she had maple syrup urine disease. Almost overnight, Carolina went from first-time mom to managing hospital stays, oxygen, G-tube feeds, and a condition that could…
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233: PTSD | What It Looks Like + Why It’s So Prevalent for Disability Parents w/ Amanda Griffith-Atkins
October 1, 2026 · 58 minA hospital admission. A seizure. A certain time of year. Sometimes your body can react to medical trauma long after the moment itself has passed. But when does that become PTSD, and what does that look like when the trauma is tied to your…
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232: Exercise + Disability Parents
September 24, 2026 · 57 minExercise can be a powerful coping tool, a way to feel stronger, and something that improves our mental health as parents of disabled children. But for those in our community, it can also be hard to access, hard to sustain, and just one…
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231: Numbing Out | When Disability Parents Need a Break From Reality
September 17, 2026 · 46 minScrolling. Comfort shows. Exercise. Reading. Keeping yourself so busy you don’t have time to think. Numbing out can look a lot of different ways. In today’s episode, we’re talking about why medical parents numb out, especially during…
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230: Amanda’s Story | Medical-Parent Anxiety, Fear of the Future + 17 Years of Perspective
September 10, 2026 · 39 minWhen your first child is medically complex, your experience can look very different from a “typical” parent. But sometimes, that’s only really apparent in hindsight. In today’s episode, we (finally!) have Amanda Griffith-Atkins on to share…
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229: Season 14 Kickoff | Our Board Retreat, Summer Recaps + Sneak Peeks
September 3, 2026 · 26 minSeason 14 is here, and this time the focus is on how raising a disabled or medically complex child impacts us as people. This season, we’ll be talking about things like anxiety, PTSD, identity, feeling like your body failed your child…
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New Launch: The NICU Survival Guide w/ Cindy Reinhard and Ashley Caywood (Summer Mini #10)
August 13, 2026 · 23 minIt’s finally here! For the last year and a half, we’ve been working on this project to be a big hug for NICU families from parents who just get it. In this episode, we’re sharing our NICU Guide for the first time, why we created it, who…
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When You and Your Child are Both Medically Complex with Sarah (Summer Mini #9)
August 6, 2026 · 20 minImagine this: You’ve just finished going through the diagnostic process for your child’s rare disease. You’re trying to find your new normal. And in the midst of all this, you continue to uncover your own medical complexities. That story…
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Single Medical Parenting w/ Danielle (Summer Mini #8)
July 30, 2026 · 31 minParenting a medically complex child without a partner or co-parent can bring a new level of difficulty. From managing the financial realities of a solo parent household to the emotional weight of making all the decisions on your own to…
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Why Asking for Help Feels So Hard (Summer Mini #7)
July 23, 2026 · 36 minAs parents taking care of disabled and medically complex kids, we could probably use a little more help and support than the average person... But that doesn’t make it easy to ask for it. From guilt to societal pressure to simply not…
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Sexual Health for Disabled Youth w/ Jill Arneson & Amanda Griffith-Atkins (Summer Mini #6)
July 16, 2026 · 30 minAs our disabled and medically complex children grow and mature, caring for and navigating their sexual health can be a tricky topic. From appropriately navigating sexual activity, consent, basic hygiene and even more complicated topics…
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Clinical Trials | Should I Enroll my Disabled Child in One? (Summer Mini #5)
July 9, 2026 · 24 minClinical trials are so important. They’re how new therapies and treatments and cures are developed for diseases, and how we update our medical knowledge. At the same time, they aren’t without risk for our kids and our families. So, how do…

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